Sound extreme? If you think so, I’m gonna guess that you’re probably average height. That’s not a judgement on you, at all. I’m a pretty open minded guy, and I didn’t see it this way either until tonight. But does it really surprise you that many of the adult LPs in the group feel the way they do about this topic? What those folks are posting about, what they’re encouraging, what they’re so happy about - it’s about eliminating the outward appearance of dwarfism. It’s not solving any of the medical issues created by dwarfism, it’s about undergoing a cosmetic procedure that stretches the shortened bones to gain height, and nothing else. Sure, it’s easier to reach things. But it’s also easy to put them on a lower shelf. I’ve seen homes completely remodeled to accomodate short stature, of course. But that extreme of a step isn’t necessary - plenty of folks shorter than 4’ tall do just fine in an average height world with minimal changes, thank you very much. I’ve seen it myself.
The adventures of the Mallinson family - parents Mike and Cherylle, 10 year old Evan and 6 year old Caitlin. Caitlin has achondroplasia, which is the most common form of dwarfism.
Sunday, December 1, 2013
ELL and the POLP on Facebook group
Sound extreme? If you think so, I’m gonna guess that you’re probably average height. That’s not a judgement on you, at all. I’m a pretty open minded guy, and I didn’t see it this way either until tonight. But does it really surprise you that many of the adult LPs in the group feel the way they do about this topic? What those folks are posting about, what they’re encouraging, what they’re so happy about - it’s about eliminating the outward appearance of dwarfism. It’s not solving any of the medical issues created by dwarfism, it’s about undergoing a cosmetic procedure that stretches the shortened bones to gain height, and nothing else. Sure, it’s easier to reach things. But it’s also easy to put them on a lower shelf. I’ve seen homes completely remodeled to accomodate short stature, of course. But that extreme of a step isn’t necessary - plenty of folks shorter than 4’ tall do just fine in an average height world with minimal changes, thank you very much. I’ve seen it myself.
Wednesday, July 28, 2010
Anyway, our little Caitlin pulled herself right past her third birthday - she's even replaced her cute little habit of holding up two fingers and stating "I'm Two!" with holding up three(-ish) fingers and saying "I'm free now! We had a big shindig in our new backyard, complete with bounce house, Cinderella cake, and takeout from Vallarta. Lots of her friends came - neighbors, friends from Early Start and Town & Country Farm School, local LP friends the Thompsons and Caitlin's favorite babysitter Ariel & family, and POLP friends the Cortez's from Oxnard, the Dinos from Arcadia, and the Moskovic/Erenea family all the way from San Diego!
It really was a blast to see everybody - our life has been so busy lately that we've really missed spending time with friends, and since we missed the national conference this year we've really missed our LPA family. We're working on plans for the D12 fall regional conference, though - we're really looking forward to seeing everybody there!
I tried to upload like 16 pictures for this post from Picasa, but i obviously haven't figured out how to do that correctly yet. Still, though, here are some pictures of Caitlin over the last three years - she's changed so much!!
Stay tuned - I don't have many pictures from this weekend (too busy doing the party, and not enough taking pics!) but I'll post a few tomorrow that pare' Stuart took from Sunday morning with Caitlin and Justin goofing around. See you then!
Thursday, July 2, 2009
Caitlin's MRI Followup (Finally, a post!)
Anyway, we got in fairly quickly to see Dr. Danielpour. His nurse did a great job "measuring" mommy and daddy's heads first so she could get Caitlin to put up with her head being measured - and there's no change, which is good. She's growing, but her head isn't at the moment. On the other hand, Dr. Danielpour was a bit concerned still with the fact that her fontanelle was still wide open, the fact that her forehead bossing is as pronounced as it is, and that she has prominent veins in her forehead. He told us that her MRI scans showed basically exactly what he was expecting given her characteristics - at full flexion her spinal fluid was completely blocked from flowing, and at full extension there were no problems at all. This also made sense when you combine it with the results of her previous sleep study, which showed more apnea episodes when she was sleeping on her back, which pushed her chin forward onto her chest, than on her stomach, which allowed her to turn her head to one side and prop it up.
Basically, the upshot is that we need to do another sleep study on Caitlin to verify whether or not she is having problems with central sleep apnea, then come back and talk to Dr. Danielpour again about the possibility of decompression surgery. If she doesn't have any central apnea problems, then we probably won't need to worry about it - but if she does, then decompression will probably be necessary. Of course, with all our insurance changes over the summer (me being off for the summer, and Cherylle getting a new job) getting the sleep study scheduled might be a big challenge - but we'll do what we can to get something on the books! Our schedule is complicated further by the NY conference - we leave Saturday and don't come back until the 15th! As if there wasn't enough going on, right?
On that topic - we're excited to see many of you in NY - and for those who can't make it, we'll see you on Facebook!

Wednesday, May 6, 2009
Cedars Sinai!


Sunday, April 19, 2009
Our first event as Parent Coordinators!
Sunday, March 29, 2009
Caitlin's walking!!
Find more videos like this on Little People of America - Los Angeles Chapter
Wednesday, March 4, 2009
It's about time!
Anyway, on to recent happenings. This also explains the long break in blogs, since there hasn't been much to write about other than work, TV and sleep. We have discovered two new shows - well, new to us, anyway. Both had been on for at least a year, but since everything we watch is on DVR it's hard to find new stuff! Leverage and Burn Notice (TNT and USA, respectively) are both really interesting shows, and have the added quirk of sharing guest stars in similar yet different roles at nearly the same time. Fun, fun shows!
So last weekend was my first weekend off in over a month. We took advantage of the opportunity to run down to San Diego for the weekend! We were looking to hit multiple targets at the same time. We wanted to spend some time with our friends Ellen & Stuart who we hadn't had a chance to connect with since their son's 3rd birthday last year, especially since we had a few things to talk to them about; we wanted to go the San Diego chapter's movie night (conveniently at Ellen & Stuart's house); and we wanted to hit Legoland on the way home before our season passes expire in April.
We packed up and headed out Friday afternoon as soon as I could get out of the office, which wasn't as early as I'd hoped which put us on the freeway through downtown LA right in the middle of rush hour traffic. It ended up taking us nearly 4.5 hours to make the trip that usually takes us 2.5 hours, and Caitlin culminated the trip by falling asleep in the car, leaning back so her post-nasal drip drained back into her throat, and throwing up all over herself in Carlsbad. We finally made it there, got settled in, and let the kids play even though they were already up way too late! Eventually they wore out and we put the kids to bed so the grownups could talk.
We've known Ellen and Stuart for a year now, and have discovered that we have way more in common than is typical for random couples. Some of it is right on the surface - we're both mixed race couples with a Filipina wife and Caucasian husband; we're both mixed faith couples, since Cherylle and Ellen both come from a Catholic background, and while Adventism and Judaism have some surface differences, they are more alike than you'd think. Politically, personality, emotionally, it's almost creepy how alike we are! The gist of this that we want to make sure Caitlin has someone to talk to when she's not willing to talk to her parents, but we want that someone to be somebody we know and trust, and will give her advice we agree with. Particularly since Ellen is an LP as well, she can advise her on things that we as average height parents may never understand, such as sexuality and intimacy, personal hygiene, relationships, dealing with the idiots in the outside world, etc. Essentially we asked them to be godparents to Caitlin. We'd like to make that official, if Cherylle's parents church will allow it, although they may not since Stuart is not Catholic any more than I am. Even if they don't, however, we want them to be unofficial godparents/mentors to her as she grows up, and think they will be really great for her. Plus, it gives us another good excuse to go over and tear up another bottle of Corralejo Reposado - that was way too much fun!
Saturday we laid around the house while Ellen cooked a filipino breakfast with garlic fried rice (my favorite!), then finally left for Seaport Village on the coast. The day was fantastic - the weather was beautiful, the traffic light, and there was a vendor making balloon sculptures for cheap! We had a great lunch at an ocean front cafe, and wandered around browsing the shops for a while having a blast. Ellen and Stuart had to leave early for a chapter board meeting, so we killed a bit of time by letting Caitlin wander while Evan got balloon sculptures and a henna tattoo. We stopped by the grocery store on the way back to pick up some soda and ice for the movie night. The group for movie night was small and intimate, but it was fun! We got to visit with another couple, Lisa and Eric, a mixed LP/AH couple, while the kids got to play with their 10 year old daughter Kiah. She was adorable, which meant that it wasn't too surprising when we learned that she'd actually been a model as a toddler!
Sunday morning, Ellen called around and got a recommendation for a great breakfast joint up in Solano Beach called the Hideaway Cafe. Despite the distance, they decided to drive all the way up and have breakfast with us, which was really great since the kids ended up being able to play some more in a little park across the street from the cafe, and Stuart got some really great shots!
After eating, we said our goodbys and headed our separate ways. We got to Legoland around noon which gave us 5 hours to play there, which was plenty of time for Evan to hit all his favorite rides and still get to wander Mini City for a while.
The ride home had slightly less traffic - it took us 3.5 hours instead of 4.5 hours, although 2.5 would have been great! Sadly, this time Evan started throwing up about 30 minutes from home. He stayed home from school the next day, but he was fine the entire day, so it looks like it was just motion sickness brought on by a long day in the sun, riding rides and having fun.
So, long post for a long weekend. Hopefully it won't be this long before the next one, but you never know!
Tuesday, January 27, 2009
No surgery - yay!!
Last Friday was our followup appointment with the ENT. We had two primary goals - to discuss the results of the sleep study, and to schedule Caitlin's ear tube surgery, depending on whether or not she'd need to have her tonsils and adenoids removed as well.
We got to Kaiser early, thanks to the fact that we always put the appointment in our calendar about 30 minutes early, then forget what the real time was, so when we get there 15 minutes late we're actually 15 minutes early. We got checked in, they took us back to get Caitlin's vitals, then we sat in the waiting room for 45 minutes. They finally called us back to an exam room, and we sat there another 15 minutes. Finally, Dr. Gross came in and told us that the problem was that they couldn't find the results from the sleep study! Fortunately, Cherylle had the number to the clinic in her appointment book so they were able to call and get the results faxed over immediately.
Dr. Gross finally came in with the paperwork, but started by doing a quick look in Caitlin's ears again - and lo and behold, one of her ears actually appeared to be clearing up! The antibiotics she took before didn't appear to help, but the heavier ones from her pneumonia actually did. Then she pulled out the sleep study results, and let us know how they went. When she slept on her back or side, which was most of the time, she only had 3 episodes per hour, which is completely under the "normal" limit of 5 per hour. When she slept on the back, which was less often, it went up to 12 per hour, which classified it as "mild" sleep apnea, which was between 5-15 per hour. Her O2 sats did drop, but stayed above 80% and as seldom as it happened, she didn't feel that it was time to be aggressive with surgery. Then, she explained that since one ear looked like it was clearing up, and since Caitlin's hearing tests all showed that she was capable of hearing, and that she was obviously picking up words, it wasn't time to get agressive for that, either; so, no surgery!!
She felt that there was still the possibility for concern in the future, so we're scheduled for another audio test in three months, with a followup ENT appointment in four months. She also wants us to repeat the sleep study again in a year or so, since the tonsils and adenoids can grow faster than her breathing passages can, and there's a possibility that the "mild" problem this year can become worse by next year... So, this tells us again that we're finally working with the right doctor - not one who thinks that surgery is the right thing to do, but one who is willing to do all the testing necessary to know that we're doing everything she needs.
Thanks again to everybody who sent us well wishes while Caitlin had pneumonia - despite the FOUR molars she's cutting right now, she's still doing much better than before! We really feel blessed about that...
Here are some shots we just scanned from last year's national - if Detroit was that much fun, I can only imagine how exciting New York is gonna be! See you guys there!


Saturday, January 24, 2009
Tag again? Why do I keep responding to these things? Positive feedback just means they'll continue!
Here are the rules:
1. Choose the 4th folder where you store your pictures on your computer. No cheating {cropping, editing, etc.}!
2. Select the 4th picture in the folder.
3. Explain the picture.
4. Tag 4 people to do the same.
Well, I'm not sure how this worked out so perfectly, but this picture is from June 20, 2007, and as you may guess it's Evan holding his little sister Caitlin for the first time. I'm not sure which makes me melt faster - the look of pride and excitement on his face as he holds her, or the way she's staring back up at him while she's only a few hours old. Man, I think I'm gonna go sniffle now!I'm not positive, but I think these four have not been tagged yet:
Kim, Alex, Sheri and Jane.
BTW - Caitlin's ENT appointment on Friday went EXTREMELY well - details will follow in a day or two...
Later, gators!
Thursday, January 22, 2009
In Other News...
Second, Caitlin finally took her first steps! She timed it perfectly so that Cherylle and I were both there to see them, too. We'd just finished parent group, and I was standing near the door talking to another parent while Cherylle was on the floor with Caitlin getting her ready to go. Caitlin, who has been experimenting with standing on her own more and more lately, was standing mostly without Cherylle's help and trying to get my attention, and since that meant she wasn't paying attention to herself, Cherylle backed away and left her standing completely unsupported. I came over and crouched down in front of her and put my hands out just out of reach and called her to come over, and without thinking she took two tiny, shaky steps and grabbed my hands!! That was so exciting to see, although I'm terrified of what it means... She's gonna be getting into even more trouble at home! LOL
Also, now that she's gotten over her pneumonia, she's cutting two huge molars on her bottom jaw that are really bothering her. She was completely miserable last night and didn't sleep well at all, even after getting dosed with Motrin. Hopefully they'll break through quickly and it won't take too long...
Finally, Tuesday was an amazing day in our household. I have two bi-racial kids, and have always been aware that it means they will be treated differently in some settings. Cherylle and I have heard the snide comments (particularly when we still lived in Bakersfield, the dustbowl of California) as long as we've been dating, and we are realistic about what that means for our kids growing up. But when you see a person of mixed race, with an Islamic middle name, and a multinational upbringing, being sworn in as president of the greatest country on earth, it really means something special. I know I have friends, both offline and on, from all sides of the political spectrum, and for many of you the current president was certainly not your first choice. What I hope we all take away from this, no matter what you feel about the current political climate, is the need for all of us to become more involved in the community around us. This country cannot survive if we all sit back and assume that somebody else will take care of things. The idea of a national day of service is a great one, but it needs to go well beyond that. Please, find a way to contribute. If your church has a social outreach program beyond just preaching, please participate. If not, or if you are not a church-goer, please find a community center or program that needs help. Feed the homeless. Donate blood. Donate clothes. Volunteer with a non-profit service agency and help that way. Join the LPA and volunteer with them. There are many parents who don't know that their kids are okay just the way they are - find them and help. Our chapter is working on a food drive for the holidays, since we know several people within our chapter who really need the help. Take ownership of this country and we can really change things for the better!

PS - tomorrow is Caitlin's followup with the ENT so hopefully I'll have more to say then!
Sunday, January 18, 2009
Announcements, announcements, announcements!
Also, for those of you not on Facebook, that nasty cough that Caitlin had over Christmas apparently did not actually go away - it just went to hide in her lungs! About a week and a half ago she started coughing bad enough to trigger her gag reflex and her fever started spiking again. We ran her back into the doctor's office, and his x-ray verified that she had pneumonia! Fortunately a big shot of antibiotics in the rear and a maintenance prescription at home was all it took to clear things up, and she's doing much better now...
Finally, we're really looking forward to District 12's spring regional this year - hopefully some good friends of ours with some experience throwing these things will do it, and we will come down to help! *hint, hint* LOL
I'll leave ya with a few pics of Evan and Caitlin playing with cousin Lindsay, who was born less than two weeks before Caitlin.
Buh bye, y'all!



























