So I've quite thoroughly documented our struggles with Dr. Tiller from Kaiser, the dwarfism specialist from the MAB who "doesn't believe in baselines". Thanks to Dr. Tiller, we're constantly amazed when we don't have to struggle with other Kaiser specialists, and that was reinforced again today with our followup appointment with Dr. Gross. We arrived today with a copy of the results of the followup tymps and hearing tests that the school district had done a week or two ago, and the first thing Dr. Gross did was to go over those with us. She was quite surprised that her tymps were still showing a flatline while her hearing tests showed that she was hearing at a normal level for her age, so she decided to have her own techs repeat the tymp tests. She also did a quick visual examination of Caitlin's ears and thought they really looked like they'd cleared up, so she wanted to re-test and see what was going on.
Of course, I neglected to mention that the "quick visual exam" included Dr. Gross cleaning some of the wax out of Caitlin's ears, which she did not care for at all. Aparrently different ethnic backgrounds have different earwax types, and Caitlin has inherited the "asian" earwax from mommy, which is loose and flaky and is very challenging to remove. This meant that it took several attempts to get it all out, with Caitlin screaming, crying and struggling, leaving Dr. Gross terrified that she was going to damage the inside of Caitlin's ear just trying to get a look!
Anyway, we got Caitlin back to the sound booth for the followup tymp test, which of course she fought tooth and nail, but after several attempts at each ear the tech and Dr. Gross both agreed that the flatline results had to be accurate. We got back to Dr. Gross's office to talk about what the next few steps should be - she was still mystified by the fact that her ears looked clean, she could hear, but was flatlining on the tymps. She asked about the sleep study, and we reminded her that it was scheduled for next weekend. She asked us to find out how quickly they would have the results of the study, because she'd really like to discuss those with us before scheduling any surgery. She said she really didn't feel like being very agressive about performing the surgery for the ear tubes since the ear problems didn't appear to be affecting Caitlin's hearing, but she wanted to revisit the issue when we came back with the results of the sleep study. She also wanted to be sure she didn't ignore the issue, because she wanted to make sure that Caitlin didn't end up with a disadvantage in her speech development through not being able to hear well.
While we were talking about "trip linking" and trying to do the tonsils and adenoids at the same time as the tubes, Cherylle mentioned the idea we'd had (and then rejected) of trying to do the MRI at the same time so that she wouldn't have to be sedated more than once. Dr. Gross then started discussing the procedures for having an MRI and asked us when ours was scheduled! We were both kind of in shock, and reminded her that Dr. Tiller had refused to order one. She then began insisting that she thought she'd ordered one for us. We were absolutely positive that she hadn't, but she couldn't think of why else she would have researched the procedures for kids with achon! Well, after some discussion, and a bunch of digging through her e-mail, she finally decided that she'd only been talking about it, but informed us that if the sleep study indicated any potential central apnea problems that she'd be happy to order the MRI for us. At this, Cherylle was flabbergasted - after all the fighting we had to do with Dr. Tiller just to get the referral to an ENT, here she was ready to give us the tests he'd refused to give us and without a second thought!
Well, I'm sure more will follow - Caitlin's sleep study is next weekend so there will be plenty to say about that. We also have another followup with Dr. Gross scheduled for Jan 23rd, by which point we should have the results from the sleep study. Also, this weekend we're doing a snow day at the grand opening of a local outdoor shopping mall, and following that up we're going to the LA Chapter's Holiday Party that I'm doing some basic lighting for. Ellen and Stuart are hoping to drive up from San Diego to join us for the LA party, which will be great - especially since Ellen thinks that Justin has a big crush on Caitlin - those two are so cute together! There's also a possibility that Cherylle and I will be taking a more inside role with the LA Chapter - we'll let y'all know how things turn out!
Oh, and finally, Caitlin is starting to let go and stand on her own more and more now! She did it for me for the first time Thursday when I was picking her up from daycare - letting go of Miss Lily and waving at me for like 5 seconds before dropping to the floor! She repeated it again for Cherylle today while we were taking her aunt on a tour of the Hollywood and Highland shopping complex, and she started taking more and more chances to let go and stand on her own the entire day! I think walking can't be too far away!
Until next time - here are a few pics from the last week or so :-)
The kids with daddy at Johnny Rockets while mommy and auntie go shopping!
Daddy and Evan freeze our backsides off at the California Living Museum Christmas Light Display - an annual fundraiser they do at the zoo -
A couple shots of Caitlin eating, which she loves to do - notice the ever present waffle in the second shot!
A few from today at Hollywood and Highland after the ENT appointment - the first two are Caitlin being cranky but cute, and the last is blowing kisses at Mann's Chinese :-)
happy 