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Sunday, December 1, 2013

ELL and the POLP on Facebook group

As most of you know, I tend to be very libertarian when it comes to discussion. I tried for a long time to run this group that way - I played the role of gatekeeper when it came to admitting members, but stayed very hands-off when it came to posts and comments. I had to change that recently in order to clamp down on a few discussions where emotions were starting to get out of hand, but I still tried to stay neutral when it came to discussion topics, in the belief that all discussion was good discussion.

Outside of the POLP group, I still feel that way. Stay away from personal judgements, and I will discuss virtually anything with you without taking offense. Religion, politics, etc - I enjoy a good discussion, even if I disagree with nearly everything you believe. Stay respectful and no topic is off limits.

Because of this, I’ve had a hard time dealing with the ELL topic on this group. In my personal life, I have no use for the subject. I’m quite proud of who my daughter is, and I’m extremely blessed by the friendships we’ve made through the LPA since Caitlin’s diagnosis. Since ELL does not solve any of the medical complications of her dwarfism, my wife and I see no reason for her to go through years of surgery. Still, because I believe all discussion is legitimate, I haven’t censored any conversations that involve ELL.

Unfortunately, every time the topic comes up, things get ugly. It doesn’t matter what I delete or how I threaten, it gets ugly. And honestly, the first ones doing the attacking have been friends of mine, and are generally adult LPs themselves. And some of them, some individuals whose opinions I deeply respect, have felt personally targeted by the responses. I’ve been trying to reconcile my opinions with the feelings of my friends and it hasn’t been making any sense.

But tonight my wife and I were talking about it, and something clicked. Let’s say that this was a group for parents of black kids. And let’s say that some of the parents were black, but more of them were white. And since sometimes it kinda sucks to be black in America, a few of the white parents have decided to find ways to make their kids look less black. They lighten their skin, and straighten their hair. It doesn’t make them NOT black, but it helps them fit in a little better. Nobody crosses the street to get away from them. Nobody keeps a close eye on them as they browse the convenience store. If they accidentally lock their keys in the car (or in the house), nobody assumes they’re trying to break in when they try to get back in.

This makes their life easier. And since it makes them happier, they like to share it with others. They share progress pictures with the skin lightening. They share before and after pictures, so you can see how much whiter they look. All their friends post words of encouragement. “You look fantastic! You're so brave!” “You’re almost as white as your dad, now!” “We are in awe of how far you've come!”

If you’re black, how would that make you feel?



Sound extreme? If you think so, I’m gonna guess that you’re probably average height. That’s not a judgement on you, at all. I’m a pretty open minded guy, and I didn’t see it this way either until tonight. But does it really surprise you that many of the adult LPs in the group feel the way they do about this topic? What those folks are posting about, what they’re encouraging, what they’re so happy about - it’s about eliminating the outward appearance of dwarfism. It’s not solving any of the medical issues created by dwarfism, it’s about undergoing a cosmetic procedure that stretches the shortened bones to gain height, and nothing else. Sure, it’s easier to reach things. But it’s also easy to put them on a lower shelf. I’ve seen homes completely remodeled to accomodate short stature, of course. But that extreme of a step isn’t necessary - plenty of folks shorter than 4’ tall do just fine in an average height world with minimal changes, thank you very much. I’ve seen it myself.

I’m not judging the folks who chose to undergo ELL. I’m friends with one of the average height parents who posts here regularly. Heck, she donated to my LPA fundraising campaign. But I do understand now why this topic causes so much division every time it comes up, and that’s brought me to a decision. As much as I hate censoring topics of any kind, ELL needs to go the way of politics and religion and stay on personal pages.

Wednesday, July 28, 2010

Wordless Wednesday



So, last weekend was Caitlin's third birthday party! Yes, I know, a lot has happened since my last post, but if I get into all that here I'll never get this post done, and I'll never get back into the habit of blogging again. A bit extreme? Perhaps, but probably true anyway :-)

Anyway, our little Caitlin pulled herself right past her third birthday - she's even replaced her cute little habit of holding up two fingers and stating "I'm Two!" with holding up three(-ish) fingers and saying "I'm free now! We had a big shindig in our new backyard, complete with bounce house, Cinderella cake, and takeout from Vallarta. Lots of her friends came - neighbors, friends from Early Start and Town & Country Farm School, local LP friends the Thompsons and Caitlin's favorite babysitter Ariel & family, and POLP friends the Cortez's from Oxnard, the Dinos from Arcadia, and the Moskovic/Erenea family all the way from San Diego!

It really was a blast to see everybody - our life has been so busy lately that we've really missed spending time with friends, and since we missed the national conference this year we've really missed our LPA family. We're working on plans for the D12 fall regional conference, though - we're really looking forward to seeing everybody there!

I tried to upload like 16 pictures for this post from Picasa, but i obviously haven't figured out how to do that correctly yet. Still, though, here are some pictures of Caitlin over the last three years - she's changed so much!!

Stay tuned - I don't have many pictures from this weekend (too busy doing the party, and not enough taking pics!) but I'll post a few tomorrow that pare' Stuart took from Sunday morning with Caitlin and Justin goofing around. See you then!

 

 

 

 
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