tag:blogger.com,1999:blog-2246912887571141353.post9053900200084159762..comments2023-09-01T04:42:07.795-07:00Comments on The Mallinson Adventures: ELL and the POLP on Facebook groupMike Mallinsonhttp://www.blogger.com/profile/05668477634350769490noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-2246912887571141353.post-46279252237268124482013-12-01T12:27:53.318-08:002013-12-01T12:27:53.318-08:00Anonymous is suppose to be ANNAnonymous is suppose to be ANNAnnnoreply@blogger.comtag:blogger.com,1999:blog-2246912887571141353.post-78703762134298548392013-12-01T11:58:31.037-08:002013-12-01T11:58:31.037-08:00I am pretty positive that lengthening the tibia ma...I am pretty positive that lengthening the tibia makes the joint more stable. Although, because her knees were so unstable, Dr. Paley wanted to put lengthening devises on her lower leg and the femur at the same time, and he said it would fix her knees. And it did! So she is approximately 3" taller in her lower legs and 3" taller in her upper legs. But she has had no issues with her Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2246912887571141353.post-44803296304517704042013-12-01T11:09:35.776-08:002013-12-01T11:09:35.776-08:00Hi Ann, I appreciate your comment. Typically, loos...Hi Ann, I appreciate your comment. Typically, loose joints in achondroplasia occur as a combination of the cartilage not forming properly and low muscle tone. Did your doctors say how the lengthening improved her loose joints? I agree, preventing pain is a positive outcome, and not simple cosmetics.<br /><br />Lengthening a single leg because one is shorter than the other is a completely Mike Mallinsonhttps://www.blogger.com/profile/05668477634350769490noreply@blogger.comtag:blogger.com,1999:blog-2246912887571141353.post-67456962528484839692013-12-01T10:58:50.568-08:002013-12-01T10:58:50.568-08:00From our experience ELL did solve a major medical ...From our experience ELL did solve a major medical issue. Our Achondoplasia Daughters' knees were so loose and full of pain. You could literately wiggle her lower leg from side to side at the knee joint. She had one phase of Limb Lengthening and her knees do not sway from side to side any more AND her knees has been pain free for 9 years. She could have done it (limb lengthening) again, butAnnnoreply@blogger.comtag:blogger.com,1999:blog-2246912887571141353.post-46262435018053690772013-12-01T07:25:18.694-08:002013-12-01T07:25:18.694-08:00Right on Mike. Yours is the voice of reason this g...Right on Mike. Yours is the voice of reason this group needs. You know how to get your point across, even dictate when necessary, without offending. Thanks for all your time, effort and commitment.jenniferhttps://www.blogger.com/profile/18326250324255592431noreply@blogger.comtag:blogger.com,1999:blog-2246912887571141353.post-30719747156013905932013-12-01T06:20:10.164-08:002013-12-01T06:20:10.164-08:00I hope it's okay that I post a comment, but I ...I hope it's okay that I post a comment, but I think your post is spot on. The comparison sums up a lot and I think should help everyone understand on some level why the posts get so contentious. Thank you again for your work with the group.Christinehttps://www.blogger.com/profile/18103347409012017484noreply@blogger.com